My story begins back in January 2003 when I could tell something was wrong with my mind and body having seen the same tell tail signs in my late grandfather and father-in-law,
then came pains in the chest, the numbness and sweating down the right side of my body, that was it, and I knew it was time to go and see my family doctor.
sent me for blood tests and an ECG which confirmed that I’d had a mild stroke and that I also had sugar Diabetes, high Cholesterol and hypertension and put me on a diet and medication. I thought that’s it I will soon feel better, but still there
was the problem with my head and I was starting to feel worse and doing strange things like wandering round the house not knowing what I was doing or why I was there, forgetting what I was doing, loss of short term memory, forgetting people I had know for
a long time, no interest in working at a job I had loved all my life, the list of things was endless… so on my next visit to the doctor I told him about all the problems I had noticed. At first he thought it was just a problem from the diabetes but
gave me a full check up again and said you seem OK and told me to come back in a two weeks time, but still the problem was there, so yet again I was sent for blood test and x-rays and from the results he concluded that I could ‘possibly’ have some
type of dementia and put me on a very mild cognitive medication and energy tablets. This went on until January 2004 by which time I was not felling good in mind or body and was not getting any better, at this point he told me there was no more he could do
for me and was referring me to a local neurologist as he now thought I had, Early Stage Alzheimer’s.
I don’t recall this coming as any surprise
to me after seeing two of my late family suffer from the same problem, but I did find it a bit disconcerting when he insisted on placing his hands on my shoulders to say a prayer over me, which had my dear wife weeping her heart out as she thought I was about
to die at any moment.
The following day I went to the ‘Neurology Specialist’ clasping my referral letter in hand and my list of things that I had
noticed change in my mind and body over the preceding years, I also wisely took a list of all the medical problems that where relevant to my late parents and family as I wasn’t to sure whether Alzheimer’s or any other type of dementia was hereditary.
My new doctor is a very charming caring lady of Chinese origin who fist gave me a full check up and said that she was not so sure it was Alzheimer’s!
But that it could be MID (multi-infarct dementia ) and changed all my previous medication which had a immediate effect and over the course of the next few weeks I started to feel much better and could actually start working again… but this was short
lived as my head was starting to get confused again although this time it was more slowly and the doctor kept saying I should go to the hospital ‘that’s in another province’ for a CT brain scan… but therein lay a predicament, (which
is another story) so I kept putting it off… even though I knew I was getting worse… and that now my walking was also getting very bad, and I was starting to get the shakes in my body that I could not control, then I started to have a problem
with my eye sight I could not see properly and my vision was becoming very blurred which I thought could be a problem from the diabetes which was the same opinion as my doctor, so she sent me to see the eye specialist who after testing my eyes very quickly
personally took me back to my neurologist and told her he felt that I should have a brain scan immediately… finely I agreed and went for the CT scan being some two years since the problem started.
I went with little trepidation of the Scan apart from what if the police stop us… but thank God
this did not happen… but nothing in this world could have prepared me for the results of the scan since I had kept telling myself again and again there was nothing wrong with me the doctors are wrong I don’t have any type of dementia, but
on seeing the results of the scan and the subsequent report my doctor told me that the scans showed positive and that I in-fact had (Mixed Dementia) being (Alzheimer’s, Multi-infarct dementia, and Parkinson’s disease). At that point I’m not
sure who was more stunned me or my doctor, or maybe it was my dear wife Sumi who had been sitting with me in the doctors surgery but not really understanding about the illness or what the doctor and I were talking about, but I could see from the anguish in
her eyes that she had realized something was seriously wrong with my health so my doctor explained it in her own Indonesian language at which point she broke down weeping cling onto me, and I must admit I’ve never felt so useless or lost for words in
my life, all I could do was to embrace her and keep saying everything will be alright… yet knowing within me the complete opposite and that it would be up to me to explain and educate her about an illness that she had never heard of before.
I realize and accept there is no cure… but it was still
a shock to the system and my thoughts started thinking about what of my life now as I was then only 58 years of age and had thought I still have a lot of productive years ahead of me… ‘But this is not the case’ so now I must start to revaluate
my life and try to live it to the full for as long as I can… hence I like to be philosophical and say that I am embarking on a very long journey… as I had done many times in my past working life, but this time there are no expensive luxurious
5 star hotels to stay in…
And defiantly NO RETURN TICKET….
On high insight the Alzheimer’s must have been there right from the beginning and as we all know is very difficult for doctors to
diagnose in its very early stages, I can only think it must have been shrouded by the MID (multi-infarct dementia) which apparently can progresses much faster than Alzheimer’s, obviously the medication brought the MID slightly under control hence I had
felt a bit better at first, but the CT scan showed the cruel reality of my destiny.
BUT a few years later the MID was amended to LBD (Lewy Body Dementia)